I am Brett Farve 01/06/2010
 
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I keep retiring from blogging and then coming back. The difference is I am not getting million dollar contracts for returning. The truth is there has been a lot going on but nothing that has really inspired me to write. Most of my life lately has been consumed with this whole colitis thing, and this blog is not the place to talk about that...so I haven't. I'm still in the midst of debating these surgeries, and how I feel about my doctor and all that jazz. I still am rockin' along in the MS department. No major snafoos or problems and I have another meeting with my new neuro specialist in late Jan (I think). When I see him then, I think I may talk to him about starting copaxone...which I REALLY don't want to do.  But Dana and Damon have all these shot parties without me and I'm starting to feel left out....

But seriously, I'm worried that the reason I hated Betaseron so much was that it just didn't mesh well with me and that I perhaps gave up a bit too fast. I think I may give copaxone a try..but there are a lot of factors...primarily my insurance. I have a pretty high deductible and my insurance doesn't cover injectibles (awesome, I know. and totally fair as well). There is the hassle of applying for patient assistance programs...the daily shot thing...and how it will play into the other medications that I'm already on that I sorta have to take.

But if I have these surgeries, I will have to be off of this medication before the surgery takes place...and then I'll never have to take them again. Pro.  I will however have to have 1-3 surgeries to get to that point, and then I guess I'll be able to take copaxone (Con/Pro).

Ah well...perhaps I should just stop talking about it...as clearly I'm just boosting my own ego....

 


Comments

Leon

Tue, 12 Jan 2010 01:01:30

Hey Jackie!

Have you ever tried anything else besides medication?
I have given up, after using Betaseron (called Betaferon here actually) for 2 years and 1 year of Tysabri. Bith didn't really help, and the Prednisolon helps only for 5-7 days. I also tried Immunoglobulin, but that didn't seen to help at all.
So now I've tried something completely else. I'm seeing this 'witchdoctor' that only gives me natural and nutritional stuff (all kinds of vitamins and supplements) and I'm seeing a Chiropractor. It does seem to work for me.
I feel stronger, I can sometimes walk without my crutches, I can pee and poop better, and I'm less easily tired...

And remember that "Big 'O'" we talked about a while back: I even can have those again!

 



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