Are We Disabled? 09/08/2009
 
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So I have struggled with this question often, mostly when its simply put on a form or something. Disabled...check yes or no. If only it were that easy.

I have this inner battle whenever I see this question put so nonchalantly on a piece of paper or a radio box online. I want more than a yes or no. I want lines. I want a "maybe" option. I want a "sometimes" option. I want a "depends on what day and what freaking time you're talking to me" option. I feel like maybe this is a really easy question for some people, but for me, and Dana and others its really effing hard to make it so cut and dry.

Perhaps they are specifically asking are you "legally" disabled, but if that was the case wouldn't it specify the "legal" part? Is disability reserved for those who carry handicapped parking permits? I suppose this just really comes down to what is disability? According to good old Wikipedia (which is totally trustworthy)

    Disability is defined by the Americans with Disabilities Act of 1990 as "a physical or mental impairment that substantially limits one or more major life activities.

Well shit...who the fuck isn't disabled at sometime. Is disability in the mind of the beholder? There should be a scale of disability on forms like this. Either you check "no" or you get to rate your disability. I don't know. I just feel like, I never know what to say for those things. I also feel like its a catch 22 to answer it sometimes. I often find myself assessing to pros or cons to whatever answer I decide to give and whether or not that could be beneficial to me.

At this point in my disease progression, I suppose I would say that I am not disabled. But am I more disabled than the other 24 yr olds I know...most definitely. However what does my disability look like? Its not in a wheel chair, its not on oxygen, and it damn sure isn't bed ridden. But instead its the stereotypical MS symptoms...the invisible disability. Numbness, tingling, fatigue, and the constant mental battles that involve toting around multiple auto-immune diseases (and now a fantastic mystery that caused my heart problems).

What is disability to you? How do you answer these questions?

 


Comments

Tue, 08 Sep 2009 09:46:30

This is such a hard question for me too. I am definitely too 'disabled' to keep a 'regular' job, but yet I'm not at the point to apply for Social Security Disability. I'm still working.

So is the question, have you been deemed disabled by the SS Administration? Then you and I would have to say no.

Is the question, are you in need of disability accommodations (ie parking placard)? Then, yes, we are disabled.

Ugh. We could go around in circles. Sigh.

Great post btw!!

 

Mon, 07 Dec 2009 09:55:09

Well said! I hate those fucking questions too. Nothing is more humbling than having to check yes. Although actually using my handicap placard (so far about once a month) and actually having one comes close.

I started having problems a week after sitting at a blackjack table in Vegas on my 30th birthday, now I have a special parking placard. Arghhh...I am definitely more disabled than I was at 30.

 



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