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You may (or may not) have noticed I've been hiding. I've been hinting at some other larger issues that have been going on, ones I have/had no desire to talk about. But alas, this wouldn't be the place I want to create if I keep hiding from you. So lets just get it out there, rip the band-aid. I have now also been diagnosed with Colitis.Ew gross, embarrassing, currently searching for a rock to hide under. A big one that can cover me forever, hide my embarrassment, my face, and persevere the smallest bit of dignity I still have left.

I feel like I'm starting over again. New diagnosis, again diagnosed by a shitty doctor who hasn't told me a damn thing. All that I know is that I've spend the last 4 days in the hospital. All I know is that it feels like I'm dying and so far, no one has told me why.

I have a serious distaste for steroids...guess what the treatment for a Colitis attack is....steroids. I feel defeated. I'm angry again. And I'm pretty sure the steroids last night made me go a little crazy. I shit you not, I heard voices, and felt like I wasn't in control of my body. It was terrifying. I didn't sleep last night. I have finally been able to eat/drink without vomiting for the first time in over a week but I still feel too weak to do anything. I dont even have it within me to bitch about the two different E.R.s I was in, in the past week. Its hard to breathe.

I am being dramatic, yes I know.

I'm having a really hard time staying on top of the meds, 9 pills a day. Plus, the steroids for now. Am highly considering giving up on the trial. Just can't keep my life/ar appointments straight right now.

Will get back into blogging once I stop feeling sorry for myself.

 


Comments

Mon, 06 Jul 2009 06:36:20

sheesh! just did a quick google and that sounds like precisely no fun at all.

much love to you - like the man said, keep on keepin' on x

 

Mon, 06 Jul 2009 07:25:32

I know exactly how you feel. I have Crohn's Disease, Rheumatoid Arthritis and Multiple Sclerosis and the treatment for all three is STEROIDS.

I used to resent it alot but after all these years (over 30), I am thankful that there is one drug for all three and not three different drugs that come with their own side effects.

The weight gain is the hardest thing for me to deal with because it doesn't come off easily.

Hang in there. I hope you feel better soon.

Anne
http://disablednotdead-anne3.blogspot.com

 

Mon, 06 Jul 2009 10:34:31

that sucks. :-(

 

Tue, 07 Jul 2009 08:17:53

Love ya, kid. If I can do anything...just call.

 

Val

Tue, 07 Jul 2009 15:28:54

:( I'm sorry to read your shitty news.

 

Thu, 09 Jul 2009 08:17:39

I'm so sorry to hear/read that...

Some people can't seem to catch a break... I wish there was anything I could do for you...

 

Laura

Fri, 14 Aug 2009 04:20:41

Hi - sorry to butt in with what might be a rather late response.

My sister was diagnosed with ulcerative colitis this year (she was bleeding for a while before they could figure out what was wrong with her).

But, her doctor wanted to keep her off steroids if it were at all possible. So she's on medication for it (which unfortunately I can't recall the name of at this exact moment). Right now it's more or less under control...although stress can trigger some problems.

Is it possible to discuss alternate treatments with your doctor if you really don't want to be on steroids?

 



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