So because of the politics of the internet there is this unwritten agreement that you're supposed to link to everyone who mentions you in their site...and vice versa. Well I think that's crap, which is why we have chosen not to have a gigantic blog roll listing every MS blogger under the sun. If you want to find people out there who write about MS or good research, that is what google is for.
Instead of keeping a list of every important website ever, I have made a list of few of my favorites, most helpful and ones that have listed us without asking for a link in return (god forbid). I will be compiling lists like this periodically, so if you want your blog, or your fav. website listed let me know, or just post it in the comments.
BLOGS - there are easily a million blogs about living with MS. Here are some that I read., many of which I found because they have left a comment on our site. I'm not saying thats the only way we'll list you, or read your blog, but...it helps.
brassandivory.blogspot.com
estreetanne.blogspot.com
noempirenomore.blogspot.com
thompsongirl84.blogspot.com/
Tinglyfeeling.com
FORUMS-Again there are a million forums here are the ones that I have used, and have worked out well for me.
Shift.ms- Two words: GREAT SITE! Dana found this one the other day and we both joined and have found it to be awesome. Its well designed, which I totally appreciate and it also hits the same market that we're aiming for. Young people with MS. They offer more of a community than we do because you can register and login to find people, and create a profile.
msworld.org -Great forum here. There are a lot of people here who are helpful and who have been doing the MS thing a LONG time. Many who are on meds, many who are not, mayn young, many old. It helped me A LOT in the beginning.
friendsofmsworld.proboards.com -A nice off shoot of MSworld.org
Patients like me This is actually a really cool site. Pre warning there are a ton of bible thumpers on here...however they have great forums and a lot of really good tools for tracking your disease progression. And its not nearly as lame as that sounds. You can click on your level if disability, mark when you have attacks, your meds and dosage, your weight, and also it gives you off an form with ALL this info in it so you can take it to your doctor and file it. The only downfall of this one is that you cannot make your info private, i.e. your weight, symptoms, and stuff, but the idea is that by being honest we can help each other. You can also type in an age range, and location to find people close to where you live. Its pretty cool.
INFO
Rocky Mountain MS Center Complementary & Alternative Medicine (CAM) - good website with info on alternative therapies. Vitamins, supplements etc.
Myelin Repair Foundation
Stem Cell Research
Stem Cells.nih.gov
The Stem Cell Blog
Medicinal Marijuana
ConquerMS
FINDING CLINICAL TRIALS
National MS Society
MS Clinical Studes
Trial Search from the Gov.
Trial Search:
