Five Stages Of Grief
1.Denial and Isolation.

At first, we tend to deny the loss has taken place, and may withdraw from our usual social contacts. This stage may last a few moments, or longer.
2. Anger.
The grieving person may then be furious at the person who inflicted the hurt (even if she's dead), or at the world, for letting it happen. He may be angry with himself for letting the event take place, even if, realistically, nothing could have stopped it.
3. Bargaining.
Now the grieving person may make bargains with God, asking, "If I do this, will you take away the loss?"
4. Depression.
The person feels numb, although anger and sadness may remain underneath.
5. Acceptance.
This is when the anger, sadness and mourning have tapered off. The person simply accepts the reality of the loss.

In a recent post that I made, there was a mention in the comments about the 5 stages of grief. Which is one of those things that I've heard about but sorta just yea, yea, yea-ed and didn't really consider. I'm not sure if I've ever really looked into this model until now and I gotta tell you, I'm not sure that I buy it. I do think that it nails down some of the major aspects of grief but to put them into clear cut steps like this, I think is a crock. I'm not sure if I'll ever reach true acceptance, because Idon't understand what my future will hold.

I think this step might work for a death, or divorce, or job loss or something, but for our disease I do not think this model works. Hell, I might run through that whole list in one day. I think that if I were to follow this list I would be eternally stuck on #1. I have a big problem with denial...not denial of the MS, but if what it restricts me from doing...or remembering...or thinking. And I also think that no matter what kind of "support system" we have, we will always feel some sense of isolation. It is incredibly isolating to be feeling something that literally no one else can understand. I go through stages related to this model all the time, but to say that the anger, sadness, and mourning will taper off is not something I can accept. I do not think I'll ever stop being upset in someway about this. I can accept that I have it, but for me that doesn't mean I will not feel those other things.

I think that acceptance of a disease has an entirely different process that never ends. I was just talking to Dana about this and how I think its common after your first year of diagnosis to think you've accepted this disease. You think you're ok with it, and life will go on. But then shortly after, something clicks in your brain and you realize you haven't accepted it. I think that the path to acceptance is long and curved and it has breaks in it. I think the path to acceptance of a disease like MS is more like a labyrinth. You can try all you want, but you may never find the end.

You may have years where you're totally ok, physically mentally and then all of a sudden something happens and you are put right back to the beginning. The sadness, isolation, anger can rear their ugly heads again and THAT IS OK. I know I'm only 2.5 years in, and for the most part..I'm ok. But sometimes, some days I feel all 5 steps within 1 day or a few hours. It can be overwhelming and depressing, but remember a lot of people do this. Its so hard to accept something that has no clear cut guidelines. Remember that this shit is hard. Its not fun. And it can be down right painful sometimes, but this is life. If it wasn't this, it would be something else and the only choice we have is to live through it. You take it step by step, minute by minute, and relapse by relapse. Its ok to never stop being mad that this happened to you, but its not ok to let that hinder your life.



 


Comments

Sandy

Thu, 30 Apr 2009 10:15:28

i think fear is missing in that list. i think i've accepted it, than bam a new sx & i say wtf & i'm afraid. i hurt all over, is this the ms or.... i don't know- fear? i don't want to be alone & i don't wish me on anyone right now. i'm pissed i'm afraid, pissed i'm hurting, pissed i don't understand, but i smile & joke & try to make everyone laugh & cry just for a second when no one is looking. i hurt & it's hard to think about anything else.

 

Thu, 30 Apr 2009 20:47:11

I had a shrink for awhile and she explained this list is not "in order". Personally, 5 was my immediate response to the diagnosis, probably because I had been feeling so crappy I was just happy it had a name and lots of treatment options. Even in year 11, 2 and 4 come and go, 1 shows up frequently but leaves quickly as well. Bargaining never entered my mind. Who do I bargain with - God? Yeah, that's productive...

 

Fri, 01 May 2009 14:13:13

I think that grieving is for how/where/what you were prior to disease. That "you" no longer exists.

I also think that with diseases like this, there is a repetition of the stages, depending on progression and events.

Back and forth, up and down...

 

Val

Sun, 03 May 2009 15:43:11

just being aware of these stages helped me understand and validate what I was feeling in the beginning. Everyday is different- personally, accepting some general truths about the grieving process helped me accept the fact that I cant just decide to be happy some days. Sometimes I still think I should just be able to stop feeling a particular way. I guess I need to grow up.

As for bargaining -- I was raised as a Christian.. and was still in the Christian world when I was dx. (attending a christian university). Bargaining was totally a part of my process -- I had Christians tell me God was trying to teach me/show me something... or that I should search my heart for some deep horrible truth that would reveal why in fact I was sick. I had some very messed up prayers, laying of hands, and 'words from God'. It was screwy. (not insulting Christianity - it was just my experience at the time)

 

Wed, 06 May 2009 07:32:48

I agree with the 5 stages, but for me it feels like I'm running (yes, I wish) in circles.

I often reach stage 1 again, after I have been in stage 5 for a while. And then, the whole process starts all over again. Different timeframes every time over ("every time over" sounds like this happens every week, but it doesn't. I think I went full circle already 3 or 4 times in the past 4 years).

Not sure what stage I'm in, right now. Possibly stage 6, ignorance ;-)

 

Kat

Fri, 21 Aug 2009 03:06:07

After reading that post then Sandy's response I feel so much better that someone else is actually feeling the same way. I’m in my first months with MS and I have been told numerous times that this is "My MS" and everyone’s is different, however its a relief to know someone FEELS the same even if they aren't feeling the same. Hope that makes sense...

Thanks for the help this site is giving me :)

 



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