I would have to say that my outtake on life is pretty much 100% realist. Which to many people equals pessimism. To each their own I suppose.

I read a lot of "mommy blogs" (which is weird because I kind of hate kids) and I actually really enjoy them. Recently one of my favorite mommy bloggers made a post about optimism, and how we need to spread some around. That by blogging we need to be uplifting as well as truthful. And while the inner pessimist in me disagrees, a large part of me totally thinks shes right.

So instead of another story about how having MS sucks, or how the drugs don't work, and how we're all going to be in wheel chairs and having other people wipe our asses.....today I will be positive.

If you're on myspace, I do apologize as you already know this story.

I do not take MS medications, (Rebif, Avonex, Betaseron, or Copaxone) and I have no desire to do so. I have gotten in minor disputes about this with my neurologist, but we've come to an agreement. I will wait for a pill form, because I was tired of the injections. So...our agreement includes vitamin D everyday, and yearly MRI Scans until an oral medication is available. This seems like a good deal to me. So last November or so when we made our deal, I went in for one last MRI for the year in December, and about a month ago I got the results. I called into the Dr to see what he had to say, I spoke to my favorite nurse and this is what she said. Basically, I have NO NEW LESIONS. Zero. AND...the ones that I do have are SMALLER. Am I some sort of a medical mystery?! Who knows, all I know is that without medication, I am doing just fine andin fact am improving. While I don't think I believe in blessings, if they existed this might be one.

One more ounce of good news.

I had 3 MRIs in 2008. The two that I had in the beginning of the year cost about $8,000. My broke ass clearly didn't have that laying around, so I did what I always do which is called into the hospital to set up a payment plan. The women on the phone didn't quite understand me and referred me to the St. Joe's patient assistance program. I was talking to the coordinator for the program and she told me it was a program that helps patients pay their bills...not a loan...not a payment program...but actually pays the bill. So I was like well...sign my ass up. Turns out being single, broke, and young can work out for you sometimes.  I waited along time to hear back from her, and when I called her about 3-4 weeks later she told me news that I could never....ever...have expected. St. Joe's was covering 90% of my bill. HOLY SHIT. I thanked this woman probably about 30 times and cried like a baby when I got off the phone with her. She had helped me in a way that I still don't have words for.

I recently received this bill from St. Joe's. It said the expenses at the top $8000 and some change. It showed their assistance $8000 and some change. And then it said what I owed.

$10

I owe this hospital $10, for over $8,000 in bills. I called my mom, my sister, my boyfriend, I called everyone who would understand how monumentally huge this was. I still think hospitals charge too much for these tests anyway, but I enjoyed the fact that I only owed them $10. If I ever hit it rich, I hope to give a gift like this to someone who needs it, like I did.


 


Comments

Tue, 24 Mar 2009 10:34:04

hey guys. erm...i found one of you on twitter. i just wanted to say i think it's cool that you have your own website about MS. i have it too. i was diagnosed (spelling?) in october of 2008. i take Rebif. and i was just wondering if you guys are going to the MS confrence? i ment some guy that has it too (he's the same age as me and lives in my city). he went there and met a bunch of cool people with MS. so yeah...anywho, good luck with it.

Ashley B.

 

Wed, 25 Mar 2009 08:58:53

Thank you for this link! I'm going to send your blog to a friend with MS. Great space and well wishes to all.

xx

 

Fri, 27 Mar 2009 09:42:42

Quite a story....

I live in the Netherlands, and my medical bill is covered by my insurance (which is mandatory here). And that's a good thing, because I couldn't pay for all the bills myself. I can check what the hospital and other doctors charge on a website and the costs are incredible. I have taken Betaferon for almost two years, which was about 24000 US$ and now am on Tysabri (1800 US$ per month)...

Add the MRI's and other hospital costs .... I wonder how anybody that isn't Bill Gates could pay for that ...


 



Leave a Reply