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After encountering the worst neurologist during my diagnosis (his name is Mark Silverman out of Milford, by the way), through word of mouth I found an amazing doctor. I loved this man and the way he ran his practice and his amazing office staff. In fact never told anyone I knew about him because I didn't want him to get too busy. He was my little neurology secret. Then my perfect doctor decided he wanted to retire, which is a patients nightmare. His replacement didn't knock my socks off. He was nice, did his job but didn't really do it for me. So I decided that since I was "in between" doctors that now would be a great time to find a specialist. Who knew what a freakin chore that would be.

I did a little but of research and found this website http://www.msneuroratings.com/, which I encourage ALL of you to use and update. It could be a great resource if more people use it. I also have a friend who sees a local neuro at the University of Michigan MS center, whos name is Dr. Irani. I work by this hospital and decided that U of M is pretty renowned and that he was the one I wanted to see. WELL...U of M lives up to its name and is snobby as ever. Not only did I have to have a referral, but there was also a process in which they could accept or deny you into their center for treatment. So from my files, they were going to decide if I was cool, or interesting, or messed up enough to see them? WTF. I was pretty pissed about this, how dare they consider denying me treatment...but then I realized...they can't treat everyone. I never found out what the grounds for denial were, but there is still a small part of me that thinks its pretty shitty. Not to mention that the wait time was over 3 months to get an appointment. Nevertheless, I still decided that I want to see this doctor so I send them all my files and information and waited.

In the mean time I called 2 other specialist both out of Detroit, Dr. Elias and Dr. Khan. I had read a lot of info on Dr. Khan and decided that he knew his shit enough for me to get an appointment with him. When I called there it was a totally different experience, more like "ok what day can you come in". I made an appointment, 2 months out and called it a day. When I was scheduling all of this it was far before my recent medical disaster, and while I was in the hospital I got a letter from U of M telling me when my appointment to see Dr. Irani was. Nice of them to call and see if I had availability that day, but who am I kidding, I'm not busy. So I called Dr. Khan and scheduled them for the same day to knock them out at the same time and get all of my little MS errands done. Once I got the U of M appointment, I canceled the one with Dr. Elias, he was a 3rd string pick anyway, also looked like he could be old, and further perpetuated my fear of my doctors retiring.

 
 
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Hi. Remember me? I'm Jackie, I run this website about MS, and we haven't talked in a while but I'm back now. Ironically enough, first blog back, I'm not going to talk about MS at all.

If anyone still reads this blog...you know that I've been totally MIA now for about 2+ months. Yea, sorry about that.

I did some writing while I was gone, however now that I go back and read what I wrote its possibly the most depressing shit you've ever read. So...instead of posting the "in the moment" stuff...I'm gonna post the aftermath.

I spend 21 days out of the month of July in the hospital. I had 5 E.R. visits. 9 days in the Cardiac wing where I was easily the youngest patient by  50+ years, and 4 of those days in the Cardiac I.C.U.

So heres the story, and I'm going to keep it short because...well I want to keep whatever readers I still have.